Invisible Illness Awareness Week–Series of Articles on Endometriosis

Here is a post from guest blogger with excellent information and links about endometriosis!

She started a blog to help her in her journey through grief, infertility, fibromyalgia, endometriosis, migraines, PTSD, depression and, hopefully, to help others in similar struggles. She uses the name “snowdroplets” because she wants to convey both her sadness and hope. Snowdrop flowers are a symbol of hope. Some will bloom in winter. Droplets…as a symbol of tears. Also as cleansing water and the life-giving properties of rain. Put together… snowdroplets.

Please click on “snowdroplets” below to see her entire blog.

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As we kick off Invisible Illness Awareness Week, I was so happy to see The Guardian publish a whole series of articles on endometriosis today!! Endo is part of my #invisiblefight. It made me so very happy to see this awful illness receive this kind of attention and to see the discussions that these articles kicked off in the comments section. I hope this will help us to get more funds for much-needed research. Here are a few of the articles:

1) Endometriosis: the hidden suffering of millions of women revealed

Often dismissed as ‘women’s troubles’, endometriosis affects one woman in 10 of reproductive age, yet a lack of research and funding means sufferers can live in severe pain, unable to work or socialise…

http://www.theguardian.com/society/2015/sep/28/endometriosis-hidden-suffering-millions-women

2) Endometriosis: 20 things every woman (and every doctor) should know

For example: you do not have this disease because you failed to breed in your early 20s. And pregnancy is not a cure!

http://www.theguardian.com/society/2015/sep/28/endometriosis-20-things-every-woman-and-every-doctor-should-know

3) ‘I’m not a hypochondriac. I have a disease. All these things that are wrong with me are real, they are endometriosis’

http://www.theguardian.com/society/2015/sep/28/im-not-a-hypochondriac-i-have-a-disease-all-these-things-that-are-wrong-with-me-are-real-they-are-endometriosis

4) ‘The pain is paralyzing’: 30 women describe living with endometriosis

http://www.theguardian.com/society/ng-interactive/2015/sep/27/the-pain-is-paralysing-30-women-describe-living-with-endometriosis

5) Endometriosis: if your doctor isn’t taking you seriously, it’s time to find a new one

http://www.theguardian.com/commentisfree/2015/sep/29/if-your-doctor-isnt-taking-your-endometriosis-seriously-its-time-to-find-a-new-one

Thank you Guardian, for raising the profile of this disease!

Thank you, snowdroplets, for writing this blog post!

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Invisible Illness Awareness Week is September 28 – October 4

This post is from the Rest Ministries Invisible Illness Week website (http://invisibleillnessweek.com/)

What is your invisible fight?

Invisible Illness Awareness Week is September 28 – October 4 and we are creating a big buzz in social media, spurring on awareness, understanding, and dispelling myths and misconceptions about living with illness.

We live in a culture that understands acute sickness. Tell a friend you have strep throat and your friend has an idea about what your next three days will entail. Friends grasp your need to rest, to eat a certain way, that you may or may not be online, the amount of medication you may take, and that you likely won’t be getting together for an event or working.

Chronic illness, however, is confusing to most people.

Illnesses that are indefinite (chronic) have a growing list of symptoms that differ between those with the same illness–and overlap with those who have different illnesses. There are no rules or guidelines about what you can and can’t do or should or shouldn’t do.

How can a person with illness barely be able to get out of bed one day and running errands for two hours the next day? If the medications are working, why haven’t you returned to your favorite activities? Are you depressed, and that is why you keep going back to the doctors over and over?

All of these are common assumptions from one who has not experienced a chronic illness.

Invisible Illness Awareness Week is trying to change that with a 2015 “My Invisible Fight Photo Campaign”

What are the photos of?

This is the fun part! Take photos of anything that is an #invisiblefight for you.

What is a fight for you that few people would even notice or understand?

Some ideas of invisible fight?

  • A staircase (or even one stair!)
  • A restaurant menu
  • The shower
  • The scale
  • A jar of spaghetti sauce (cannot open it!)
  • A pair of shoes
  • Your bed
  • A certain outfit or item of clothing
  • A blow dryer (that is heavy to lift)
  • A heavy door
  • A car’s steering wheel
  • Your purse (too heavy to carry?)

It doesn’t have to signify something you cannot do. It can represent something that is just an extra challenge for you, something that makes you sigh with frustration, or perhaps hold your breath with a bit of anxiety.

You can take as many photos as you want and share them all over the place between now and October 4th.

If you can, add #MyInvisibleFight to the actual photo.

What hashtags to use

The specific hashtag for this event is #MyInvisibleFight.

Additional hashtags you can use that are for Invisible Illness Awareness Week 2015 are: #invisibleillness #invisiblefight and #iiwk15.

Here is one of the photos I’ve posted:

A pic of how I usually look to others, and how I look at home. It was hard to post the 2nd pic, but it's important to make people see the "visible" part of invisible illness. #myinvisiblefight #iiwk #invisibleillness

A pic of how I usually look to others, and how I look at home. It was hard to post the 2nd pic, but it’s important to make people see the “visible” part of invisible illness. #myinvisiblefight #iiwk #invisibleillness

Lisa Copen established Invisible Illness Awareness Week in 2002 and she is excited to see how you touch lives this year in 2015!