Gratefulness in the Midst of the Battle

Ecstatic! Amazed! Grateful! I feel all of these and more about my right hip replacement I had 3 months ago. I’ve been back to work full-time since early July, and am tolerating that very well. Each day I gain strength and flexibility in my hip and leg, and I marvel at the skill of the surgeon and the way God made our bodies to heal!

Although there were days that were difficult, I am grateful to God for many of you who prayed, sent cards, made meals, drove me to appointments and physical therapy. I’m especially grateful for my servant husband, who faithfully filled my ice machine every night to reduce the swelling in my leg, who assisted me when I was learning to walk with a walker, then a cane, then no support, and who didn’t expect me to make meals once I was healthier and started back to work. We ate dinners from Chipotle, Chili’s, Moe’s, and some of our other favorite haunts more than we cooked…and that is OK:-)

I’m also grateful to my physical therapist, Randy, from Commonwealth Orthopaedic Associates Physical Therapy at Body Zone Sports & Wellness Center. He has rehabilitated just about every major part of my body over the last 12 years with skill, encouragement, and a lot of laughs.

On the disappointing news front, my Lyme disease is still active, and my pain from endometriosis is beginning to rear its ugly head again. And yes, that’s after a hysterectomy and a subsequent laparoscopy to remove endo after the hysterectomy.

Regarding the Lyme disease, my doctor thought I might be in remission, but when the blood test came back, it showed I still had active disease. I am also beginning to have some symptoms of a co-infection, Babesia. So I will be back at the Lyme doctor in September. In the meantime, I’ll take oral antibiotics to continue to fight the Lyme.

And regarding the endometriosis, apparently what I’m experiencing isn’t all that uncommon. Many women believe that a hysterectomy is a cure for endometriosis, but actually, it just gives doctors more treatment options. However, many of these treatment options don’t work.

An online article by The Cleveland Clinic states, “Whether endometriosis will recur after surgery depends on how severe the disease was at the time of surgery and how completely the surgery removed your lesions. Lesions that appear after surgery may be new or pre-existing. For this reason, it may be difficult for your doctor to tell whether your disease has come back or is progressing. The most recent studies have shown that endometriosis recurs at a rate of 20 to 40 percent within five years following conservative surgery. Um hmm….you read that correctly…..20 to 40 percent.

About 5 million American women have endometriosis. Endometriosis can occur in teenagers and adult women of all ages, but most typically it occurs in women ages 25 – 40. Mind originally occurred in 1988 when I was 33. I had about 4 laparoscopies over a period of 20 years before I had the hysterectomy and subsequent laparoscopy last August in 2013.

Implants can form in many areas, most commonly in the following locations in the pelvis: ovaries, fallopian tubes, uterine surface, cul-de-sac (an area between the uterus and rectum), bowel, bladder, rectum, and the peritoneum (the smooth surface lining that covers the entire wall of the abdomen and folds over inner organs in the pelvic area). Rarely, remote sites of endometriosis may include the spinal column, nose, lungs, pelvic lymph nodes, the forearm, and the thigh.

On my last visit to my gynecologist, whom I’ve had for 31 years, he said my exam was better than previous ones, but I was tender in the spots where he found endometriosis before. So we decided to wait until I’m at least 6 months post-op from my hip replacement to give the nerves, muscles, and tendons time to heal. After that, we will decide how to address the endometrial pain going forward. He says it will probably be another laparoscopy.

So, even though I sometimes feel like just pulling the covers over my head and sleeping through life, God has shown me that I need to be grateful for life, whatever state I’m in. If I wake up in the morning, can put my feet on the ground and move forward, it’s a blessed day. I just ask God for His strength and wisdom to give me a good attitude and the physical and mental ability to do the tasks for each day.

So stay tuned for Lyme and endometriosis updates…and keep those prayers coming!

 

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