30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Ulcerative Colitis, Endometriosis, Late Stage Lyme Disease
2. I was diagnosed with it in the year: 1982, 1987, 2007
3. But I had symptoms since: same year as diagnosed for first 2; who knows for last one?
4. The biggest adjustment I’ve had to make is: take medication daily, being willing to change plans
5. Most people assume: since I look great, I must feel great.
6. The hardest part about mornings are: getting awake and moving
7. My favorite medical TV show is: none now–used to like ER.
8. A gadget I couldn’t live without is: my Healthy Back Bag
9. The hardest part about nights are: getting to sleep.
10. Each day I take _18_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: research them thoroughly and make sure God has given me a peace about them before I try them.
12. If I had to choose between an invisible illness or visible I would choose: neither, but God has used it mightily in my life to teach me, humble me, and to help others.
13. Regarding working and career: God has given me just the right job for this time in my life.
14. People would be surprised to know: that I struggle with pain and sleep everyday.
15. The hardest thing to accept about my new reality has been: I can’t always do all that I want to do.
16. Something I never thought I could do with my illness that I did was:
17. The commercials about my illness: none.
18. Something I really miss doing since I was diagnosed is: Except for short period, I haven’t missed much.
19. It was really hard to have to give up: teaching certain group fitness classes.
20. A new hobby I have taken up since my diagnosis is: reading and writing….lots of it.
21. If I could have one day of feeling normal again I would: thank God for that precious gift!
22. My illness has taught me: that I am not in control and that God wants me to comfort others as He has comforted me.
23. Want to know a secret? One thing people say that gets under my skin is: You look great; you must be feeling better!
24. But I love it when people: truly want to know how I am doing and are willing to specifically pray for me.
25. My favorite motto, scripture, quote that gets me through tough times is: Psalm 16:8 “I have set the Lord always before me; because He is at my right hand, I will not be shaken.”
26. When someone is diagnosed I’d like to tell them: I will pray for them, answer any questions they might have, get as educated as you can about your illness and treatment, and find a doctor who will treat you as a “whole” person.
27. Something that has surprised me about living with an illness is: I’ve had to rely on God’s strength more than my own.
28. The nicest thing someone did for me when I wasn’t feeling well was: made me a meal (I don’t enjoy cooking much even when I feel great!).
29. I’m involved with Invisible Illness Week because: we have 4 people in our family and each of us has at least one chronic invisible illness.
30. The fact that you read this list makes me feel: grateful and thankful. Thanks for reading and thanks for your prayers!
Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at www.invisibleillness.com